Walk in my shoes for a moment through the eyes of my child...

Hi! I'm Jake and I am five years old. My parents adopted me when I was ten months old in. They knew I was a sick little boy, but they had dreamed of me for many years. My mama had worked as an occupational therapist for 25 years but stopped working to take care of me fulltime.  I see 13 different specialists in the Hospital. We keep the roads hot as we travel four hours one way. I have a generic condition and am dependent on my parents for all of my care. My mom and dad feed me with my feeding tube every two hours though the day. Since my body and brain do not cooperate well together, I cannot do anything. My parents happily do EVERYTHING for me.  My bones are brittle and soft ,so they use a hoyer sling to lift me. My loving parents do so much  and are my best friends! I even go out with my parents on their dates, ha ha!  My mom and dad love each other, and we all work together to have good days. Anything you can provide for them would be so appreciated!  To be honest they don’t have respite, so I’ll always be with them. But I don’t think they’d have it any other way. We are a team!