Walk in my shoes for a moment through the eyes of my child...
​Hello Everyone, My name is Xena and I was diagnosed with ATRT at 11 months old. I battled the monster and beat it! I was seven years post diagnosis and labeled a survivor. However, I had many lasting effects from chemo and radiation. In June 2023, my little body was too tired, and my heart could not fight any more. I went into cardiac arrest. On June 29, 2023, I gained my angel wings. My family misses me, but I will see them again! Please send them something special to show them I am happy. Love, Your Warrior, Xena
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Hi! I am Jaxson and am homebound due to lung disease. I have had 27 ICU stays, and am still frequently admitted to the hospital with illness. I require a lot of care and am oxygen dependent. One of my brothers requires a lot of therapy and has to be watched carefully. He is frequently admitted to behavioral health hospitals. One of my parents must take care of us constantly. My mom had to quit her job to be a full-time caretaker. My parents never get time alone or free time and would love a massage or overnight in a hotel to get sleep. Please uplift them because they deserve it a lot!
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